There is a man who has been diagnosed for Parkinson’s disease for many years. He has learned how to manage his symptoms to the best of his ability and exercised daily. Although he lives alone in an assisted living home, he prides himself on remaining independent and still has a full-time job that he does from home. But there has been one thing missing…love.
One day, he met a beautiful woman and they hit it off famously. They were smitten kittens and a relationship began to grow. The man was feeling blessed that he had actually met someone who didn’t look at him and only see Parkinson’s disease. She could see past the tremor, beyond the rigidity and adored him for who he was… or so he thought.
It wasn’t long before she started to encourage him to move out of his home and into an apartment, where she could care for him full-time. Although a little apprehensive, he was excited to think about living independently. The possibilities were endless.
After a short time, she began to ask for money to provide full-time care although she was not a trained professional. She began living with the man and using his credit cards to buy groceries for the house. While living rent free and collecting $600.00 a week for her services, she began driving him to his Neurologist appointments. This was perfect seeing as he had to give up driving last year due to his condition.
The man did feel slightly uncomfortable with the fast pace of the relationship, but he couldn’t bear going back to the loneliness he felt in assisted living. He finally had everything that he had wished for… someone to love and care for him as his Parkinson’s progressed.
Within a month of meeting his beautiful companion, she began to ask for things that would benefit them both. It started off with small things… a new couch for their apartment, dinner at an expensive steak house, new tires for her car (I mean, she was driving him to all of his appointments after all). The man didn’t tell anyone about his new love because he knew something was off, but he couldn’t put his finger on it because she was so sweet to him.
At his next Doctor’s appointment, the man was having a bad day. His tremor was off the charts… he even asked for his companion to help him with breakfast. This time, she insisted on coming into the exam room for his appointment. As the man had difficulty speaking, she would communicate for him. She claimed that because no one could understand him, she would so kindly talk for him. The man didn’t object, sometimes it was easier for her to speak then having to muster up his voice.
One afternoon, on the way home from an exercise class, the woman sad she had a surprise for him. As she pulled into the Lexus dealership, she cheered, “We’re getting a new car!” Puzzled, the man tried to make sense of the fact that THEY were buying a new vehicle… her 2012 Honda Civic was running just fine since he just bought new tires. After meeting with the salesman, it was clear that the woman had already picked out the car she wanted during a previous visit she made to the dealership while he was napping.
The man saw the final price tag of $45,000 for the Lexus and was shocked to hear his new “girlfriend” (that’s now what she called herself) wanted him to pay for the ride. After denying her request, they drove home in silence. “What happened? I thought that she truly cared for me,” the man pondered.
As the days rolled by, the man began to get depressed. He thought, “Is the only way for me to have a relationship with a woman is to accept being manipulated?” He didn’t know how to end the relationship. Those close to him didn’t know of his companion, and those that he had little contact with, believed that they were two birds in love. They spoke of how brave the woman was to care for such a great man who has Parkinson’s. The man felt stuck. He was afraid of retaliation if he tried to end the relationship with his “girlfriend”, but also feared being alone even more.
This manipulation is happening everyday around us. Some view Parkies as frail or weak… easy to take advantage of. They use our longing of being loved and accepted against us. Although they may seem genuine, their intentions will only benefit them.
How can you protect your self from potential manipulators?
– Go with your instinct. If it seems fishy, then you probably have a huge piranha floating around in your life.
-Listen to your Wolfpack. Those in your pack know you best and will be looking out for your best interest.
-Know your self-worth. You are awesome and just because you have Parkinson’s disease doesn’t mean that you are damage goods. You still deserve to feel loved and be respected.
-Set your boundaries. You know what your comfortable with, so don’t compromise.
-Shut it down. In some cases, you might need to completely remove the manipulator from your life. Tell them you will have no further contact with them or have someone from your Wolfpack take the reins, then block their phone number and move on with your life.
Life is short. Choose to keep people close to you that lift you up and truly care for you. Parkinson’s disease is hard enough… don’t spend energy on those trying to take advantage of your awesomeness.
Jon says
Allison
I am 48 dignosed ten years ago and wife left 5 years ago I found love 4 years ago or thought I did.but 18 monhs later I walked away it wasn’t to be. So I am currently single exasperated by dating sites but am thinking of trying again Alison is right and I would say trust your instincts but kep eyes open and value yourself. Parkies deserve soulmates to.
All you need is love and beer
Drunk on life lose the fear
If we all buy our round
Love annd beer will be found
So start with friends and family
A hug for each it should be
We all deseve the support
to receive also need to export
Everyone different normal doesnt exist
Touched by madness insanity kissed
Drop the frown for a smile
Happiness shows some style
Doesnt matter about the past
It is gone it didnt last
The present given as a gift
Hope for future gives a lift
All you need is love and beer
Gets you through another year
All you need fits like a glove
All you need is beer and love
PerkyParkie says
Love the poem. Thank you for sharing it!
Harold says
Sad very sad. I guess we could all be a mark. I’m glad I have a great wife of 47 years.
Carol says
How sad! Enough that he was doing great with Parkinsons then along came this “lady”!
Clarisa ortIz says
My Mom was diagnosed at 38 and we just celebrated her 72 birthday last Saturday. Exercise and the proper diet kept her healthy. It is being a family affair. We say we speak Parkinson’s since then. We all learn about it and keep informed with the new. When DBS was new and looked like the solution of the future, before being approved, we travel to Emory, Atlanta for her first DBS.
She is still living with my father in their own home and with relatively little help. Eating on her own and still laughing with her family.
Bettina says
That story gives me so much hope. I was diagnosed at age 34. I’m 45 and I just had DBS. Your mom’s strength and perseverence are inspiring!.
JP Smith says
Right on. This situation is insidious, rather like the frog in the pot not noticing the temperature is slowly increasing until too late… then it’s dinner. Maybe look for friends at church or another place with oversight, like Rock Steady Boxing?
John Barry says
Allison,
I was getting ready for the punchline to your joke when I realized it was a story that is not only true but painfully accurate.
Thanks for sharing this warning for everyone in our community.
John Barry