I wasn’t going to write this blog post. I try to stay positive and didn’t want to bring anyone down, but part of the reason I blog is to share my personal experiences. Good or bad. Therefore I am sitting at my desk and typing this post for all of you.
I felt so much support and love from many of you about my recent surgery. I asked for help and boy did I get it! However, I have received many calls, messages and emails asking for an update of my progress…. here goes…
I wish that I had some better news to tell you but my surgery failed 4 days after the procedure. Son of a biscuit. I guess I didn’t win that 60% success rate lottery. But there’s always plan B.
My body has been assaulted by 6 surgeries within a 5-month time span… all that have required general anesthesia. My hair has been falling out, my nails are breaking, my body has been traumatized and my spirit has been trampled on. Not to mention that I will be going back into surgery tomorrow to replace the drain with the intention of trying to lose this fistula again in a couple of months.
What if that doesn’t work? Plan C. This would be my personal hell, with another abdominal surgery leaving me with a temporary colostomy bag. Trying to keep my spirits high has been a challenge, knowing the possibility of what the future holds. With that said, I think it’s time for a mandatory cuteness moment… goats in pajamas!
Ahhhh… that’s better. So let’s end this on a high note by listing things that I am grateful for.
-I am grateful for having such an amazing Wolfpack. My friends and family have really stepped up to the plate making sure I had all the help needed to get through this challenging time.
-With all this other crazy stuff going on in my body… Parkinson’s disease doesn’t seem that bad. I know it’s because I am distracted by other difficulties, but hey, I will take it.
-I’ve had other people bring me FroYo… like non-stop. This has allowed me to refrain from going to multiple locations, just so the people working at Yogurtland don’t recognize how often I’m really going. Little do they know, I’m still getting my share of the delicious treat.
-My dog Crash has been a great cuddle buddy.
-I’ve found the most awesome summer dresses that are stylish, but comfortable.
-I have extensive knowledge about current movies and television shows if anyone needs a recommendation… I got this.
But most of all, I am grateful to all of you for the love, support, prayers, and kindness. You have made my life a little brighter. I think I just might win the lottery this time.
Yes good foods is good medicines. I was hospitalized by accident. I didn’t realized my low dopamine level. I was cheered by a young women who explained about her tube into intestine at our group Olive meeting. She said she was hospitalized two months before me. She gave me a blesslet made in breezes saying it’s her part of rehabilitation. I was in the hospital when my birthday coming. So she made me happy. My husband smuggled a piece of cake to my hospital room to taste not eat. She was released from the hospital two months after I was released. She smiled at me and said that when I met her in rehabilitation room. I learned after surgery it’s not always recover smoothly. But as she shows spirit will not sulender. You are brave. Good luck in your next challenge.
Thank you for sharing your story Nobuko.
Perky Parkie, you are such an amazing role model and inspiration….this extra road you have to travel just isn’t fair ! You will be in my thoughts for a good recovery from this latest health issue. As we all know laughter is a great medicine and I know you have a wonderful sense of humour I am taking a risk here … .one of my favourite songs when Mr Parkie is playing havoc with my person is “Always look on the bright side of life” Its a monty python number from the 1960 the humour is dark I sing a bit and then the song gets stuck in my brain then I have a little laugh and spend the next half an hour singing the song, driving everyone around me crazy……’ its not that my family don’t like the song they sing with me because I can’t hold a tune and they feel I need some singing help. So not only will I send healing vibes across the internet I will sing this song for you, lucky, you wont be able to hear my voice love and healing denimarie 09 and Mr Parkie
Ha, Denise! I bet you can really sing that song with a passionate Parkie twang to it!
I don’t have any cute sayings or words of wisdom. I just know you are unbreakable and the world is a better place with you. Stay Strong.
Thank you Dale for your lovely message!
I keep my fingers crossed hoping the B-plan gonna be yours! You’re such an example! I love the energy you’re sharing here! Thank you for this! Bisous Véro
Bisous, Thank you for crossing your fingers!
If I could I would trade places with. You in a minute because I have lived a full and happy life !!! I just have Parkinsons !!
Very sweet of you Ed. I hope to know a happy life with Parkinson’s… or whatever comes my way!
Hey Allison,
With all of the support, love, et cetera that you have received. You DID win the lottery!!!
Far greater people have made the comment, that those who are loved and admired and that have friends are the WEALTHIST of all.
I know that it is not Christmas but Clarence Jr. won his wings because of you!
Thank you, David! I am a pretty wealthy lady!
Keep fighting hard. My wife and I wish you well in your recovery. As the first PD blogger to inspire me to do the same, we need you smiley and unique take on PD and froyo to keep on keepin’ on.
Best of luck
Dan,
Thank you for sharing that I have inspired you to start your Parkinson’s blog. We both need to keep a unique and light-hearted take on PD! And trust me, when I got home from the hospital today, Crash was holding a cup of Froyo waiting for me.
Allison,
Don’t know what time your surgery is, but just know that there’s so much positive energy and beautiful pink, loving light heading your way. You’re such a bright light in the world. I always look forward to your posts. They help me deal with my hubby and his PD. Don’t fret. I’m sure that this surgery will be the miracle.
Love and blessings,
Raisa
Raisa,
Thank you for sending pink, loving light my way. My surgery was this morning, now I’m back at home with my dog Crash and a cup of Froyo! Doing well and taking time to recover.
Oh darling girl! You have inspired and brought me joy on so many occasions. I hope you know the sincerity with which I wish you all the very best for your health! I know in my heart it will get better, which ever way it goes. I just know. So much love and support to you now xxx
Thank you Shelley for such a sweet message. I read it just before heading to the hospital today. Perfect timing!
You mentioned a medical problem with Cyst a while back, Is this the same Medical issue?
Well what ever the problem you seemed to be hopefully on the mend.
I get that surgeries Are very difficult on the body I just got done with my 3rd surgery. Thank goodness for Pain medication.
May this medical issue go far far away and never bother you from this point moving forward.
Thank you, Richard!
I think.you are so courageous in the hardest ways it is to be courageous. Know that every post you write makes a difference. I wish you lots of little miracles that will add up to a turning point for the better. You have tremendous follow through and I hope it serves you well. I wish I could do more than tell you my heart goes out to you. You are in my thoughts n prayers and I shall raise a cup of froyo to you after I grocery shop!
Cindy, I’m hoping for a little miracle too! I hope you enjoy that fro yo after shopping today, thanks for thinking of me!
Dang! I was hoping no news was good news. Guess I took you off my prayer list too soon. I got too preoccupied with my own situation after my doc said she thinks I might have MSA instead of PD. Anyway, you’re back on the list and prayers will be forthcoming.
Oh no Art! I’m so sorry to hear that news. I will keep you on my prayer list now best wishes!
Oh, I thought you knew. Frozen yogurt makes hair fall out. He-he. Good luck in the morning!
Thanks, Dad! Wish you were here for all the fun!
I do too…..love your grateful’s and upbeat attitude…..prayers and healing light being sent for tomorrow ‘s surgery.
Brenda
Thank you, Brenda.
Thank you for sharing this Allison… praying that your health improves with the surgery tomorrow… and the rest of the year turns for the better for you ..
Thank you, Shane! Looking forward to listening to your music.
Best of luck to you.
Ten years ago I was in the same position. I had surgery for a Sarcoma in my abdomen. I then developed a fistula. I had two drains that looked like giant coconuts in a holster on a belt. I ended up with a “temporary” ileostomy at is still with me.
The upside is it saved my life and after ten years I am still kicking. Slower of course from Parkinsons.
As someone just told me: When life gives you lemons,demand some sugar. Otherwise when you make lemon-aid it will suck.
Prayers for a full recovery for you. I enjoy your blog.
Jim, sorry you’ve gone through the fistula adventure… hopefully your “temporary” friend will be gone someday.
What’s the one summer movie you recommend? I hope that goat video didn’t hurt your surgery areas too much. I died laughing. And bless your dear sweet body. I send you love, Ally.
Diane,
For movies, I would go with “Kodachrome” on Netflix or “The fundamentals of Caring” is also a lovely one too. Thank you for sending your love.