Back to the hospital
When I first arrived at the hospital emergency room, I was having severe chest pain, which was so painful that I thought that something must be wrong with my lungs or heart. I didn’t know if this was due to my symptoms that I described in my blog post, “Advanced Parkinson’s Overnight” or if something else more sinister was brewing within me. I was ordered to get a CT Scan of my chest and abdomen which would show any abnormalities, such as if I had a parasitic twin. While I waited for the results, I was given a breathing treatment to help with my oxygen levels.
Unfortunately, the pain in my chest was not getting better and now I had nausea to just make my stay in the emergency room a bit more delightful. I was resting on the hospital bed, groggy from pain medication, when I felt it coming. I jerked up into a seated position without any control and proceeded to projectile vomit all over myself. Now, I am not talking about a couple of heaves and some bile. I am talking about a full-on exorcist, head rotating, with a priest at the foot of my bed sprinkling holy water on me while saying, “The power of Christ compels you.”
My demon possession grabbed the attention of the nurses who ran in to help. They were cleaning up my mess when the Doctor came in with the results of the CT scan. It was what I had feared, I had a bowel obstruction and what is the treatment? One of the worst experiences I’ve had in the hospital… the nasogastric tube. This cavalcade of fun is when you have a tube placed up your nose, down your throat and into your stomach… awesome, right? Who wants in?
Being in the hospital is no vacation. The food consisted of “chips and sips” which means sips of water and small chips of ice. They wake you up ever 4 hours for your vital signs and to take your blood. So when you find even the smallest hint of positivity, you latch on. My Dad saw a poster about pet therapy that the hospital provides. He was so excited that he might be able to bring some happiness to me because I love animals so much.
Bring on the pet therapy
The next day, a dog named “Maya” came knocking at my door… well technically, she didn’t, her owner did… dogs don’t have the paw capability to knock. I stood up out of bed to pet my new furry friend but I was so excited, I began peeing on myself. The only thing that came to mind with urine dripping down my legs was, “I am actively peeing right now.”
The woman who brought Maya to me politely says, “Oh, that’s alright. Let’s just clean up a little before she gets on the bed.” After a quick clean up, I got to snuggle with Maya, but I was so overwhelmed with emotion I began crying. I told that dog all my problems with snot dripping, tears streaming, and incoherent voice just as if she was my Therapist. My Dad said, “Why are you crying? This was supposed to make you happy.” I laughed.
Finally, the day came for my discharge from the hospital… again. Feeling weak from my stay, I was wheeled out and on my way home. My parents passed the torch again and my Dad went home and my Mom traveled to me in California. I was hoping that this was going to be the start of getting back to whatever normal was. I had a team of at home health care that would help me with bathing, changing my ostomy bag, physical therapy, and a registered nurse to oversee my treatment. I felt that this time was going to stick and I could start the recovery process, but my body had other plans.
Allison,
Words are completely insufficient. A hug. That alone can convey all that I have to say. I hope you feel the power of the prayers and calming thoughts of healing, offered by me and many others. May they envelop you…and support you as you heal.
Anyone would feel lonely, especially when faced with a solo 45 minute colostomy bag change. And I completely agree with your opinion on the Rhinosaurus (NG) tube. Sometimes, though, Paleolithic medical concepts like “bowel rest” actually are the best therapies. All takes time. Your excellent meditation skills will allow you to direct your thought energy on healing of mind, spirit and body. All will be well in their own time and space. That’s what my Hug would say.
Fondly,
Tony
Thank you, Tony! That means a lot to me. I will take that hug!
Reading your post gave me those same happy tears, I’m glad you have a canine friend who can be our (your cyber friends) surrogate in giving you snuggles, even if his visits are brief and not often enough.
You’ve been given a heavy crown to wear while inspiring others to shoulder their burdens with dignity. You win the Teacher of the Year for inspiring strength and optimism in the direst circumstances. Your parents get Best Supporters Ever awards for being there at your side, never giving up on their little girl who grew up to be Queen Dominatrix of Adversity.
Hi Dani, Thank you for my new title, “Queen Dominatrix of Adversity”… it’s not easy to say it 10 times fast, but I tried.
Perky Parkie; I’m a care-r for my husband of almost 35 years. I admire you and your parents. The only thing I can imagine worse than seeing my Prince Charming suffer and fight would be to see my sons.
You are an inspiration. I wish you could have your own therapy dog. You certainly have earned one in the hardest way possible. You are an incredible and beautiful young lady. I pray a cure comes for you soon.
Thank you for blogging. It’s important to have you in our lives. You are loved and respected beyond your
wildest dreams. I pray you are able to have a wonderful Thanksgiving with family and friends.
Hugs.
Sharon, thank you for your prayers and kind thoughts.
Love you Perky Parkie, you do have a way with words, love your writing, keep fighting. Love from Fran and Dave
Thank you Fran and Dave!
Another amazing blog post. When I see my sea of emails, I start deleting away but always keep yours so I can come back to the when I have time, You are such a hoot. A true motivator to make the most out of life. Thank you for sharing and inspiring with every step you take. May they all be steps forward! Sending healing vibes your way always, Allison.
RB,
Thank you for your kind words… and not deleting my emails! Ha!
I am praying for you and your family.
Thank you Princess!
You have wits and humor under any circumstances. Whenever I see you smile makes me so happy and you are my hero and will be forever!
Sending you a bundle of hugs and kisses.
Oh Heather… you just made my day! Thank you for your kind words.
Al to Al… you inspire me and make me laugh! Love you!
Love you too Al! 😘
My Dear Alison,
You are truly a fighter and role model for me. Stay funny!
Jean, thank you for your kind words!
God bless you, for keeping us in stitches, while you suffer out loud.You are a lovely, graceful and witty woman, who gives us all hope (and a giggle)
Annie, happy to hear you enjoyed my blog poster.
I’m not sure those who read your blog can take anymore and we’re not even you having to endure all these complications my heart goes out to you, my friend. I believe there’s another book in the making coming up soon this is why I always tell everybody to be grateful for everything that’s in your life you never know what tomorrow holds. with prayers and hugs I hope this ends this season of tubes. When you’re able to come to your next support group I say we meet at your favorite yogurt place continue healing and keeping that Parkey attitude and sweet smile
Bonnie, thank you for your message. I’m taking it day by day right now. Also thank you for holding up the Brea group! You’re the best!
Dear Allison
If you are not the toughest person on this planet, you are certainly among the top 10! You have been through so much yet manage to keep your sense of humor. We love that about you! We chuckled at many of your observations. Keep waging the battle. You are doing a great job. As UCLA fans, we have a John Wooden quote for you: “When the going gets tough, the tough get going.” There’s no doubt in our minds that you are one tough cookie!
Much Love from your Wolfpack Members,
Rich and Claudia
Rich and Claudia, thank you for your continued support and love. Miss you guys!
Allison
As a former nurse I cannot tell you how moved I am by your courage to share your experiences so freely. You are helping many in ways you may never know by bringing some normality to the chaos of PD. Thank you for your courage. I trust you are fully restored soon!
Stay Strong
Tim
Thank you, Tim!
Get well soon. I’m rooting for you!
Allison, sending great love and wishes for more pet visits OUTSIDE of the hospital, where I hope you remain for a long time (outside, not inside, the hospital, just to be clear.)
Eli, thank you!
I wondered where you went. I am so sorry for your pain. Get better, again!
Opps.. forgot to mention, I’m 58, and have had Juvenile Onset PD since I was just 16
I feel and understand what you are going through, as I’m on my second trip into the hosp. here at Gritman Medical Center, in Moscow Idaho, since Halloween… looks like I’ll be here for another week… and IT SUCKS…………. anyway dear, Get Better and I’ll race you, and Let’s see who get out first….~GIGGLE~
Hugs and Kisses dear
Brigitte
Brigitte, sorry you’re having a tough time also! Sending positive energy your way!
You don’t have to try everything that the hospital has to offer. You should stay home more! Seriously I know you want to be at home. Will pray for positive outcomes and better mobility. Bless you, Alicia
Nothing beats your own bed at your home after spending a week in the hospital.
You have been through so much and you have not lost your sense of humor. Rest and feel better. Your in my prayers.
Thank you, Sharon!
Laughter is indeed the best medicine…. love your humour & tenacity. You are amazing!
May I ask how old you are?
How long have you had PD?
Sending love from Cape Town South Africa 🇿🇦
Hi Rose, I’m 41 years old and I’ve been diagnosed with PD for 8 years. Time flies when you’re having fun…
Muffin! I cryed and laughed all the way through this with you. Maybe time for a sequel book 😎 Sending love! ❤️
Muffin! Glad you liked my blog! Miss you. Love you.
Allison, you have an incredible attitude and a sense of humor that doesn’t quit! All of us who read your blog are with you in spirit and wish you a speedy recovery.
Thank you, Kai!
Dear Allison
Your posts are better then Netflix! All of these bad things will make the good things to come even sweeter! The Linda Blair reference was a hoot!
Lots of hugs to you and Crash
Stephanie, 😂 ha! Happy you liked it!
I pray for you everyday. I can’t believe all you have been through. You are such a strong person. You are amazing that with all of your medical issues you take the time to write and keep everyone posted on how you are doing. You are a warrior princess. I will continue to pray for good health for you.
Nancy, thank you for your prayers!
One thing that makes the ng tube worse is when the person putting it in doesn’t know what he/she is doing and punctures your lung. Brings a whole new level of excitement…
You’ve had enough fun for now. Time to work on feeling better
Sue, ouch!!
This has not been your year. We are all thinking positive thoughts for you – so glad you got to snuggle with a dog – they are the best.
Thank you Fran!
Best wishes for your better health./ might I add that i had the pleasure of having a naso-gastric tube in my nose way back about 30 years ago.. was for the bleeding ulcer I had..but I agree, it’s no picnic….
Ann, you’re right… so not fun!
Oh my goodness, sweet friend! I have to admit..I laughed! That’s ok right?! But my heart goes out to you and I think of you all the time and am so glad you are a master at the crying/laughing at the same time routine! Love you tons and so thank full-time for your blog to keep up with you and stay connected if just through they keyboard! HUGS!
Oh Jenny, please laugh! Sometimes that’s the one thing that helps to get through the tough times!
This has been one heck of a year for you Allison …. I don’t think my thoughts and prayers are doing much…. I think I’ll have to request on my wish list to Santa that he bring you better health…
Wishing you , Mom and Dad a turn for the better and a smooth road to better health…
Thank you, Shane! Santa can’t come fast enough!