When I first became a member of the Parkinson’s community in 2010, there weren’t many resources available to us… in fact, my Neurologist didn’t even have an informational pamphlet to hand me with the diagnosis of a neurodegenerative disease at age 32. That’s one of the main reasons I decided to get involved in helping others. Back […]
When Did I Become So Scared?
Last week I flew to Arizona to surprise my mom for her well-deserved retirement party. She had no clue I was going to be there hiding in my brother’s pantry. I was waiting for the perfect time to come out of the closet and present myself. My goal was to get her to cry tears of joy… […]
What It Feels Like To Be “On”
After last week’s post about “What it feels like to be off”, it is now time to flip the script and explain what it feels like to be “on”. As I described in my previous blog, the term “on” relates to if your medication is effectively working within your body and your symptoms are under […]
Being Mauled By A Bear
I sat in an uncomfortable flower-print chair in my neurologist’s office. The nurses at the front desk were talking to each other about what type of sandwiches they would order for lunch. The background was filled with traces of annoying soft-rock music and an overpowering smell of stale coffee. My name was called. As I […]
The 1,000 Mark
Well it happened. I have offically passed the 1,000 mark. I know it might be a small goal for others but for me, this was huge. Today, I have over 1,000 people who have chosen to be part of the cool club and subscribed to my blog. From my first blog posted in April of […]
My Parkinson’s Magic Wand
Each and every day, I am reminded of what Parkinson’s has taken from me. Some of these things that PD has robbed me of are simple, like inability to multitask, slow movements, rigidity or blurred vision. But some of these things that are being seized are important like my balance, freezing or poor speech. What if I […]
Generic Vs. Name Brand Medications
I have had a few inquires about the difference between name brand Parkinson’s medicaitons and their Generic form recently, so I thought it would be a good time to repost my blog about my experience. Enjoy! This last week, I had a ton of medication fluctuations… ok, maybe not a ton, but the inconsistencies were […]
Are Routines Helpful?
I know that I am getting old…I can feel it. Days start to roll by and the months add up. But when did my life get so mundane? While recovering from my hellish year of medical challenges… Ha! Can’t keep a good girl down… I noticed certain patterns. When your life is chaotic, and everything […]
Just Striving Not Thriving
No Joke here… a week in my life is like a month in an average person’s life. Take for example since the last time I blogged, I’m now the proud owner of two fresh batteries for my Deep Brain Stimulators. This procedure gave me further exposure to anesthesia (like I needed more) and incisions under my muscle […]
The Future Of Deep Brain Stimulation (DBS)
What does the future look like? Will we be gallivanting around in flying automobiles? Perhaps our homes will be keyless and completely automated to the sound of our voice. Maybe we will have robots that are programmed to be our caregivers. Considering how fast technology is growing, these ideas may not be that unlikely. Just […]
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