My family lives in Arizona, so it ‘s my daughterly duty to make a valiant effort to celebrate the yearly turkey day in the desert. But, 5 years ago, due to a hectic work schedule, I would have to spend Thanksgiving on my own in Southern California. A master plan was in the making…. I would demonstrate […]
12 Things Not To Say To Someone With Parkinson’s
It can be difficult knowing how to respond to someone who has Parkinson’s disease (PD). Trying to find one sentence that expresses your concern, compassion and your desire to help can be as difficult as hugging a greased pig. Sometimes our best intentions are taken out of context and we can sound insensitive. So instead […]
Perky’s Pick-Stamina Compact Strider
Let’s face it, sometimes I just don’t want to leave my couch. It’s almost as if the cushions become a vortex, pulling me back into its cozy fluffiness. It also doesn’t help that my dog Crash has magical snuggle powers. I believe that he flicks his supernatural dander dust on me which then turns me […]
Perky’s Interview with Brian Grant
It’s the last day of the World Parkinson Congress and although I’m completely exhausted, my fomo is keeping me from diving into those freshly ironed linens on my hotel bed. For those who aren’t well versed in hip lingo, fomo is the fear of missing out. And let me tell you, there is no way […]
Arriving At The World Parkinson Congress
There is always something comforting about walking into a room and spotting another Parkie, but to walk into a hotel filled with your peeps is like a dream. Parkinson’s can feel like you are going into battle alone with nobody to watch your back. So when I got to Portland for the World Parkinson Congress […]
How To Wear The Duopa Pump
I have had such great comments under my original post regarding the Duopa pump which as many of you know is a gel formulation of carbidopa/levodopa enteral suspension infused directly into the small intestine. Since then, I have gained more information on various Parkie’s personal experiences and even had a dear friend who recently had pump attached. […]
Tips For Traveling to WPC
It is almost time for the World Parkinson’s Congress (WPC) in Portland and I’m as giddy as high school girl the night before prom. On top of being an Ambassador for the event, I going to make new friends, eat super yummy food and learn what’s new in the Parkinson’s world…. and I mean […]
Moving with Apple Workshop
We live in a Splendiferous time of technology. Did you ever think that you could talk to your watch and it will dictate what you said, then create a detailed text message that you can send to your dog to let him know you will be home late but will bring him a bully stick? Don’t […]
Why Go To WPC 2016?
I am sure that you have heard about the upcoming World Parkinson’s Congress (WPC) that will be held in Portland this coming September. But are you still not sure if you should go? There are many excuses that you could come up with when deciding to go; such as traveling can be a bear, the […]
Perky’s Picks-AlignMed Postural Apparel
It’s a perfect time for this blog as I find myself hunched over my laptop taping on the keyboard. I try to remind myself to focus on my posture, but as soon as I get distracted…. I morph into the Hunchback of Notre Dame. So what’s happening to my body with Parkinson’s disease and how […]
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